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| Last updated on May 13, 2008 |
Our mission is to support research seeking the cause of Nephrotic Syndrome and Focal Segmental Glomerulosclerosis (FSGS), improve treatment and find the cure.
Description:
We are an organization focused on funding research into Focal Segmental Glomerulosclerosis (FSGS) and related diseases, which affect thousands of children and adults throughout the nation. We are committed to being a proactive, helpful, reliable resource for patients and families dealing with these potentially devastating diseases.
History:
NephCure was formed in 1999 when parents of children with FSGS came together to form the only organization solely committed to finding a cause for Nephrotic Syndrome and FSGS. Since it's founding, NephCure has made many achievements in raising awareness of the importance of FSGS research. Please visit our website for more information (www.nephcure.org).
Contact people:
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Miriam Long, Marketing Administrator, (phone), (email)
Ivy Cohen, Project Director, (phone), (email) |
Office fax number: (610) 540-0190
Address:
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15 Waterloo Ave, Ste 200 Berwyn, PA 19312 (See a map) |
Web Site: http://www.nephcure.org
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