[ View Opportunities ]
| Last updated on June 26, 2008 |
The mission of the Pacific NW Friends of FSH Research is to encourage and fund Facioscapulohumeral Muscular Dystrophy research (or FSH) in order to find a cure or treatment for this progressively disabling condition.
Description:
FSH research has been neglected even though it is the 2nd most common form of Dystrophy in the adult population. FSH affects more than 25,000 people of all ages in the United States. Pacific Northwest Friends of FSH Research, based in Kirkland Washington, is focused on raising money for FSH research and giving hope to those living with this disabling condition. An Annual Fundraising auction is our primary fund raising activity.
Our 4th "FiSHing for a Cure" auction will be held on January 26, 2008 at the Bellevue Hyatt. Many volunteers are needed in order to make this event a success. The Pacific NW Friends of FSH Research is a volunteer based organization which consists of a volunteer board of directors, a scientific advisory board and volunteers from the community.
History:
Our organization is a grass roots non-profit which was founded in June 2004. We began after, Brian Colella, was diagnosed with Facioscapulohumeral Dystrophy, when he was 16 years old. Brian was then a student at the International Community School in Kirkland Washington. He shared his story with the school and the wider Seattle community in order to help increase the public awareness of FSH.
Since FSH research had been neglected by existing agencies we felt it necessary to form our organization. Our first gala fundraiser was in January 2005. Pacific Northwest Friends of FSH Research works to raise money for FSH research, We hope that this research will help find a cure or therapy for FSH.
Contact people:
Office fax number: (425) 576-9245
Address:
 |
217 19th place
Kirkland, WA 98033
This location is NOT handicap accessible
(See a map) |
Web Site: http://www.fshfriends.org
Directions:
|
Volunteer activity takes place throughout our community. |
Miscellaneous Information
| Liability |
|
No
|
| Does your organization welcome court-ordered community service volunteers? |
|
Yes
|
| Does your organization have volunteer positions for youth 12-18? |
|
Yes
|
Be the first person to offer feedback on this agency!
Post a volunteer reflection to share your experiences with other volunteers!
|
