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| Last updated on May 26, 2008 |
The Lupus Foundation of America is the nation's leading nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus and providing support and services to all people affected by lupus.
Description:
We are an all-volunteer, non-profit corporation, recognized by the State of Iowa. Lupus is a chronic autoimmune disease that causes inflammation of various body systems, especially the skin, joints, blood and kidneys. There are approximately 1.6 million in the US. Anyone of any age can have the disease, but women 13 to 44 are 90% of the target population. Lupus is more prevalent in women of color. There is no cure, but the disease can be managed to allow patients to live a full life. Currently at the national level there have been advances toward finding a cure. Our Chapter raises funds specifically to promote research. The Iowa Chapter provides patient support and education through a network of support groups across the state. And via our toll free telephone hotline. The Chapter distributes educational materials to patients, physicians, libraries and schools, holds educational seminars, conducts fundraising activities and patient advocacy before national, state and local policymakers.
History:
The Lupus Foundation of America, Iowa Chapter, Inc., was formed in 1978 to provide support and group strength for people who have been diagnosed with lupus, along with their families. The Chapter has continued to advance awareness in the general public as well as the medical community. We have an annual walk during Lupus Awareness month as well as an annual meeting aimed at raising awareness and further education of the effects of the disease.
Contact person: Kendra Isola, Office Manager, (phone), (email)
Office fax number: (515) 277-0376
Address:
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PO Box 13174 Des Moines, IA 50310 |
Web Site: http://www.lupusia.org
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