The mission of the Prader-Willi California Foundation is to provide to parents and professionals a state network of information, advocacy, and support services to expressly meet the needs of children and adults with Prader-Willi syndrome and their families.

Description:
Prader-Willi California Foundation's vision is that people with Prader-Willi syndrome may pursue their individual hopes and dreams to the full extent of their talents and capabilities and that we will help them achieve their goals.

PWCF works hard to:

• Protect and promote the welfare of persons with PWS
• Provide education and support services to the families of persons with PWS, as well as other care providers, extended family members, and family friends
• Communicate and publicize information about the Syndrome to the general public
• Improve professional awareness of the Syndrome and the use of state-of-the-art treatment and management strategies
• Support professionals' commitment to continued research of the Syndrome
• Promote the establishment and improvement of residential facilities
• Establish and maintain a state-wide network that supports:
• Early identification
• Early intervention services
• Referrals to appropriate resources
• Coordination with specialists for diagnosis, medical intervention and treatment, therapeutic interventions and treatment, nutritional management, and behavioral and psychiatric management strategies
• Educational programs, workshops, in-service programs for parents, care-providers, regional center caseworkers, educators, and health care professionals
• Advocacy services and community awareness
• Respite services



History:
Prader-Willi California Foundation (PWCF) is a non-profit, charitable corporation established in 1979. The Foundation is an affiliate of Prader-Willi Syndrome Association (USA), and is comprised of parents, friends, and relatives of persons with Prader-Willi syndrome, as well as many dedicated professionals and care providers.



Contact person: Lisa Graziano, Executive Director, (phone), (email)
Office fax number: (310) 372-4329

Address:


514 N. Prospect Ave., Suite 110-Lower Level Redondo Beach, CA 90277 (See a map)


Web Site: http://www.pwcf.org

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