The PKD Foundation vision is that no one suffers the full effects of PKD.

The PKD Foundation mission is to promote research to find a cure for polycystic kidney disease (PKD) and improve the care and treatment of those it affects.

Description:
The Philadelphia Chapter of the PKD Foundation supports the PKD Foundation in its quest to improve clinical treatment and help find a cure for polycystic kidney disease (PKD). The Chapter Coordinator may live and lead the chapter from anywhere in the greater Philadelphia area. The chapter does not have an office; the volunteers work out of their homes.

PKD is one of the most prevalent, life-threatening genetic diseases. Over 50% of those with PKD will develop kidney failure for which dialysis and/or transplantation are the only options to prolong life. The chapter focuses on six mission areas: raising money for PKD research; increasing awareness of PKD; educating the public about PKD; lobbying Congress for research dollars; offering support to those affected by PKD and being part of the whole (the PKD Foundation).

History:
The PKD Foundation has been existence since 1982 and has played a significant role in promoting PKD research, increasing awareness of PKD, educating the public about PKD, lobbying for greater federal funding of PKD research and offering support to those affected by PKD. The Philadelphia Chapter has been in existence for a number of years, although it is somewhat quiet at this point until a leader is found.

Contact people:

Andrea Johnson, (email) Taryn Egelanian, NE Region Volunteer Manager, (phone), (email)

Address:

Anwhere In Greater Philadelphia Area Philadelphia, PA 19134 (See a map)

Web Site: http://www.pkdcure.org

Miscellaneous Information

Are court referrals welcomed?
	No